Talit’s Story

MY NAME IS TALIT KARIM BORN MARCH 24 1966( BEFORE YOU READ ON ENGLAND WON THE WORLD CUP THIS YEAR )
 AND I SUFFER FROM BECKER MD WHICH WAS DIAGNOSED AT HE AGE OF 14 YEARS WHEN AT SCHOOL 1 DAY AFTER PE
 MY LEGS BELOW THE KNEES WENT SOLID AND I WAS IN SEVERE PAIN SO MY FATHER TOOK ME TO OUR FAMILY
GP AND AFTER MUSCLE TESTS IN VARIOUS HOSPITALS THEY SAID I HAD BECKER MD.

 

I HAVE BEEN QUITE ACTIVE TRIED MY BEST TO FIGHT THE CONDITON I DID,WALKING RUNNING,PHYSIO AND SWIMMING BUT EVEN THIS
ALTHOUGH KEPT ME ON MY FEET I STILL FELL IN AWKWARD POSITIONS AT TIMES BRUISES AND CUTS WERE QUITE NORMAL BUT I
STILL CARRIED ON.
 
IT WAS SUPRISING THAT NO ONE IN MY FAMILY HISTORY HAD BECKER MD DOCTOR’S SUGGESTED IT MAY HAVE MISSED A GENERATION
BECAUSE MY FATHER BEING 85 YEARS OLD NOW DOES NOT KNOW IF ANYONE IN HIS GENERATION HAVING THIS PROBLEM. 

 

IN 1998 I GOT MARRIED AND WE HAVE 3 CHILDREN  2 BOYS AGE 18 AND 15 AND 1 GIRL AGE 11 WE LIVE IN A ADAPTED HOUSE
WHICH WAS ADAPTED WHILE I WAS ON MY FEET AND NOW THAT HAS HELPED PERFECTLY I CAN GO ANYWHERE IN MY HOME.
SOCIAL SERVICES AND MY DOCTOR HAVE BEEN REALLY GOOD TO HELP ME WHEN NEEDED.
 
MY 2 LADS DON’T HAVE MY CONDITION MY DAUGHTER MAY BE A CARRIER AND THERE IS A 50% CHANCE HER CHILDREN MAY
 INHERIATE  THIS CONDITION I AM PRAYING SHE DOES NOT BUT MOTHER NATURE CAN SOMETIMES BE CRUEL.
 
DUE TO FAMILY FEUDS 2 YEARS AGO I ENDED UP WITH DEPRESSION AND WAS HEADING FOR A NERVOUS BREAKDOWN THIS TOOK
YEARS OFF ME 1 WAS FALLING A LOT MORE MY HEAD AND ARMS ARE FULL OF SCAARES I WAS NOT THINKING RIGHT WAS HAVING
PROBLEMS AT WORK. NOT SLEEPING AT NIGHT WAS JUST FED UP OF LIFE.

 

I WENT TO SEE A DEPRESSION CONSULTANT  AND WITH HELP FROM MY FRIENDS AT WORK WAS ABLE TO PULL MY SELF
OUT OF IT BUT THIS TOOK A TOLL ON ME I LOST THE ABILITY TO STAND ON MY FEET AND NEEDED HELP FOR THE FIRST TIME
IN MY LIFE WITH BATHING AND TIOLET NEEDS MY WIFE AND MY TWO BOYS HAVE BEEN A REAL HELP IN MY DESPERATE NEEDS
WITHOUT THEM I WOULD BE LOST. LAST WHEN I WENT FOR MY REGULAR HEART AND LUNG TEST THE MACHINE DETECTED MY HEART NOT FUNCTIONIING AT 100% SO I HAVE BEEN GIVEN TABLETS TO HELP MY HEART TO PUMP PROPERLY SO THIS IS ANOTHER PROBLEM I AM HAVING
TO GO THROUGH AND I KNOW A LOT IS YET TO COME IN THE YEARS AHEAD.
 I HAVE HAD HYDROTHERAPY TREATMENT THIS HAS WORKED REALLY WELL STOPS MY MUSCLES FROM WASTING AND STIFFNESS
1 ALSO GO TO THE NEURO MUSCULER CENTRE IN  WINSFORD FOR PHYSIOTHERAPY WHICH KEEPS MY MUSCLES GOING THIS
TREATMENT IS DOING ME REALLY GOOD.
I WORK AT REMPLOY IN OLDHAM WERE I HAVE BEEN SINCE 22 YEARS THE GOOD THING ABOUT REMPLOY IS THAT ALL THE PEOPLE
ARE DISABLED SO YOU CAN HAVE A NATTER ABOUT VARIOUS CONDITIONS AND ALSO THER IS NO DISCRIMINATION REGARDS YOUR
DISABILITY.  I DO PAYROLL ADMIN AND WHEN I WAS GIONG THROUGH DEPRESSION  I DECIDED TO LEAVE BUT MOSTLEY ABOUT MY
CONDITION BUT REMPLOY REALLY HELPED TOGETHER WITH ACCESS TO WORK TO KEEP ME HERE.  I WAS SUPPLIED WITH A NEW DESK
AND A POWER OFFICE CHAIR AND SOMEONE TO HELP ME IN AND OUT OFF MY CAR AND BECAUSE OF THIS I AM STILL AT REMPLOY.
 A FEW WEEKS AGO MY SONS SAID TO ME DAD IT DOES NOT MATTER IF YOUR LEGS HAVE GIVEN UP WE WILL BE YOUR TWO LEGS
FOR YOU AND MY DAUGHTER ALWAYS HAS A TODDLER KEEPS ON SAYING SHE IS GOING TO BE A DOCTOR TO MAKE DADDY BETTER
THIS BRINGS TEARS TO YOUR HEART KNOWING HOW MUCH THEY CARE FOR ME AND THESE ARE THE MOMENTS I LIVE FOR.
 
I AM 42 NOW BUT I STILL THANK THE LORD FOR WHAT HE HAS GIVEN ME A GOOD FAMILY, THERE IS ALWAYS SOMEONE A LOT
WORSE THAN YOU REMEMBER THAT, LOOK AT THE GOOD THINGS IN LIFE AND CARRY ON.
 
ANYONE WITH BECKER MD WISH TO TALK PLEASE CONTACT ME VIA E MAIL OR MOBILE DETAILS BELOW
 THANKS
 TALIT.M.KARIM